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Dr. Amy, Psy.D.'s posts Post Back to profile
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Aurin Azadî

@dramypsyd @actuallyautistic You mean like some drugs or medication do not work in autistics as intended?

I'm afraid you cannot say this or that won't work or will do something different. That is more individual, like the sensory issues.

For me: antidepressants do not work. None of them. Not at all. They just make me fat.

From another neurodivergent person I know that she reacted in an … let's say, unpleasant way to Tavor. She said her limbs dropped down and then she just fell to the floor. I never tried that stuff, and I never will.

Some say weed does not have any or an unpleasant effect on them, others say it helps them. I never tried, but would like to someday.

31 May 2023 at 19:42 | Wall-to-wall | Open on todon.eu
25 comments
Dr. Amy, Psy.D.

@atarifrosch @actuallyautistic Ooooh the med thing is good to mention too! I was thinking like EDS and stuff, but atypical med responses are also important to be aware of and NOBODY tells us that!

31 May 2023 at 19:42 | Open on ohai.social
Zumbador

@dramypsyd @atarifrosch @actuallyautistic yes atypical med response is important!

And thinking about that, it sort of overlaps with high rates of alexithymia and poor interoception as well as atypical pain response.

Health providers can get very puzzled if you don't know how you feel, or can't tell the difference between hunger and stomach pain and anger.

Or if light touch is unbearable, but a broken bone doesn't seem to affect you that much.

31 May 2023 at 19:51 | Open on mefi.social
DELETED

@Zumbador @dramypsyd @atarifrosch @actuallyautistic

One time, I broke a rib wrestling, lost that match, won the one right after that, and then went on to audition and my agent said it was the best audition of mine he had ever heard

31 May 2023 at 19:55 | Open on mastodon.social
Dr.Nick

@VoxofGod @Zumbador @dramypsyd @atarifrosch @actuallyautistic I walked off a dislocated shoulder, arm dangling out of the socket, but screamed like a BeeGee whose balls were in a vice when I stubbed my toe

31 May 2023 at 20:23 | Open on mastodon.ie
Aurin Azadî

@devxvda @VoxofGod @Zumbador @dramypsyd @actuallyautistic Heard about these effects that some people don't feel massive pain, but never had experienced that myself. On the contrary, I react strongly to every kind of pain, it's one of the „sensory issues“ I cannot stand, like coldness or loud noises.

31 May 2023 at 20:25 | Open on todon.eu
wakame

@atarifrosch @devxvda @VoxofGod @Zumbador @dramypsyd @actuallyautistic

In case auf autistic people, pain is often ignored by doctors etc. Because there is not enough pain-related grimacing going on.

Related: Weird pain scales that have different smiley faces for the pain. And what does "worst pain you can imagine" even mean? I can imagine a lot. In fact, the one time I experienced what could be called a 9 was what I would call a 7.

31 May 2023 at 20:37 | Open on tech.lgbt
DELETED

@wakame @atarifrosch @devxvda @Zumbador @dramypsyd @actuallyautistic

In the human lexicon of pain, it goes childbirth, kidney stones, diverticulosis, dislocated shoulder.

I will never forget when I got my second diverticule as a 9-year-old.

The pain was so great that I knew it was really bad and wanted to lay down on the sidewalk

That pain is something I believe I was conditioned to be afraid of as a result, to this day.

But without any question, psychological pain is exponentially worse

31 May 2023 at 20:39 | Open on mastodon.social
Dr.Nick
DELETED

@devxvda @wakame @atarifrosch @Zumbador @dramypsyd @actuallyautistic

I'm actually just paraphrasing Teresa of Avila, who said the same thing

And as far as people who spent a life in physical pain goes, she's up there

She writes about it interior castles. In the sixth book of it, she says 'you will know you are here, when God gives you a pain so bad you don't know if you will live or die

But don't worry, it gets worse!'

Obviously this is my extract, not verbatim

31 May 2023 at 20:49 | Open on mastodon.social
🍥SarahBurnout🍥

@wakame @atarifrosch @devxvda @VoxofGod @Zumbador @dramypsyd @actuallyautistic Pain scale is entirely subjective and pretty ridiculous. They acknowledge this but insist I still use it. Pretty prejudicial as well. I've broken bones and reset them without pain. I do not scream in agony with the worst pains. So when I mention pain, it is usually not taken seriously.

31 May 2023 at 20:41 | Open on mas.to
🍥SarahBurnout🍥

@wakame @atarifrosch @devxvda @VoxofGod @Zumbador @dramypsyd @actuallyautistic It may be relevant that pain meds do not work for me. Opioids to not work at all on pain, except not more than 5mg codeine, which is apparently very suspicious to them. 5mg codeine is extremely effective for me. Anything more does not work. Toradol and apap burn like hell, though.

31 May 2023 at 20:47 | Open on mas.to
ScottinSoCal 🇺🇦 🕊 🏳‍🌈

@wakame @atarifrosch @devxvda @VoxofGod @Zumbador @dramypsyd
@actuallyautistic

When I went in for gout, the doctor acted like she thought I was exaggerating, until she examined me. Then she told me I should be rolling around screaming, not limping into her exam room.
If it hadn't gotten to the point I couldn't stand the weight of a bedsheet on my foot, I wouldn't have gone in when I did.

31 May 2023 at 21:11 | Open on computerfairi.es
wakame

@ScottSoCal @atarifrosch @devxvda @VoxofGod @Zumbador @dramypsyd @actuallyautistic
I got a hole in my eardrum fixed a few years back.
The doctor first told me it would be faster if I didn't move, then wondered why I didn't move or indicate pain while he was doing super painful things.
Sorry for wanting to get this over with...

31 May 2023 at 21:15 | Open on tech.lgbt
DELETED

@devxvda @Zumbador @dramypsyd @atarifrosch @actuallyautistic

Most of my pain tolerance comes from a life of diverticulosis that was ignored by everyone

I had an ankle surgery years ago and when they put the electrodes on my foot and told me to tell them when I was at a point of intolerance. The dial goes from 1 to 100

She kept on saying 'are you okay or are you okay?'

I topped out at 47

Then a little while later there was older dude and a kid that got their electrodes after I did...

31 May 2023 at 20:25 | Open on mastodon.social
DELETED

@devxvda @Zumbador @dramypsyd @atarifrosch @actuallyautistic

It was fun because they both were amazed, the kids stopped at 12, the adult at 17, I think?

My physical therapist said 'yep, he's a stud'
So of course I had to show off a little bit more and ask for some more juice I think I made it up to 50 maybe?

I think we are told to ignore a certain pains if they are convenient to our caregivers, and those are the pains we end up having preternatural endurance for

@devxvda @Zumbador @dramypsyd @atarifrosch @actuallyautistic

It was fun because they both were amazed, the kids stopped at 12, the adult at 17, I think?

My physical therapist said 'yep, he's a stud'
So of course I had to show off a little bit more and ask for some more juice I think I made it up to 50 maybe?

31 May 2023 at 20:27 | Open on mastodon.social
Dr.Nick

@VoxofGod @Zumbador @dramypsyd @atarifrosch @actuallyautistic The IRA blew out my knee caps for selling in the wrong part of town and I didn't feel a thing. But the dentist poking me made me cry /jk

31 May 2023 at 20:29 | Open on mastodon.ie
DELETED

@devxvda @Zumbador @dramypsyd @atarifrosch @actuallyautistic

😎🤠🤓

Yeah u don't sell anywhere but in the northern six counties :-)

31 May 2023 at 20:30 | Open on mastodon.social
Dr.Nick
DELETED replied to Dr.Nick

@devxvda @Zumbador @dramypsyd @atarifrosch @actuallyautistic

My cultural and political acumen were completely spent with my lame joke, so I don't get the reference :-)

31 May 2023 at 20:32 | Open on mastodon.social
Dr.Nick replied to DELETED

@VoxofGod @Zumbador @dramypsyd @atarifrosch @actuallyautistic Irish song about a guy who steals corn from the British to feed his starving family and is sent to Australia as punishment.

You know, just normal things.

31 May 2023 at 20:34 | Open on mastodon.ie
DELETED replied to Dr.Nick

@devxvda @Zumbador @dramypsyd @atarifrosch @actuallyautistic

Well, normal for the British anyway 🙂

Just finished watching a BBC thing called poldark which was not bad, as far as populism goes, but there's always that hook at the end that 'you're not really populous unless you like the crown?'

31 May 2023 at 20:37 | Open on mastodon.social
DELETED

@atarifrosch @dramypsyd @actuallyautistic

When I finally started medicating with cannabis, that was the beginning of my entry into the world as a human being not as a person in pain, both emotionally and physically

31 May 2023 at 19:52 | Open on mastodon.social
Aaron JawnXotic, n’est-ce pas?

@VoxofGod @atarifrosch @dramypsyd @actuallyautistic here to say amen to this. Slowed me down enough without dulling my senses further than the gaps I didn’t know about yet, to question my impulses and, with discussion and reflection, understand and live with intention

31 May 2023 at 21:11 | Open on jawns.club
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