Less than 20% of autistic adults are in full-time employment. Many of us drop out of the workforce after just a few years. Why is that?
Let's talk about Autistic Burnout!
#ActuallyAutistic #Autism #Neurodivergence #MastoArt #Comic #Comics
Less than 20% of autistic adults are in full-time employment. Many of us drop out of the workforce after just a few years. Why is that? Let's talk about Autistic Burnout! #ActuallyAutistic #Autism #Neurodivergence #MastoArt #Comic #Comics 73 comments
I live in France and I'm lucky enough to work in the educative system: I work full time 3 days a week, and I have holidays for 2 weeks every 7 weeks, plus summer holidays for about 2 months, so it helps a lot to not have a burnout @newtsoda Thank you, my partner hit burnout recently this way and scared herself, I've been sending over everything I've found on this at her request, I'm adding this to the set @newtsoda Thank you for this! I often need to see/read these reminders living in a household where i’m the only one not on the spectrum and wanting to understand as much as possible. @newtsoda I hear accommodations thrown around a lot but I wonder what some of these would be? @chipchirp @newtsoda if you're autistic "enough", you count as disabled here in Germany. One of the associated accommodate it's you get more sick days. (Above 50% or so disabledness, which is roughly equivalent with "not being able to hold a steady employment") For the employer you count towards a quota of disabled employees. If an employer is big enough and doesn't meet its quota, they have to pay a fine. @chipchirp @newtsoda oh, it's a linear function alright, but I'm not entirely sure how it's handled for autism. The percent disabledness scale is universal to all kinds of disabilities. There's values you get for missing digits is limbs, sitting in a wheelchair etc. Only some rules, especially those affecting employers, have a threshold. I believe you get to go to the zoo for free at less than 50% for example - but I'm not that familiar with the system. @lizzard @chipchirp Not to stir the pot, but I'm originally from Germany and had to leave the country due to absolutely abysmal attitudes towards disability there. Educated Germans will look you straight in the face & argue that they don't think wheelchair access in public spaces should be considered a requirement. And don't get me started on the approach to education... It is, sadly (and I expect mostly unconsciously), a remnant of policies & attitudes from a certain period of German history... @newtsoda @chipchirp okay, that sounds harsh. Sorry you had to hear such nonsense! Things are changing much too slowly, that's true. Also, yeah, do not get me started on any aspect of the education system. It's a shame in all kinds of ways. @newtsoda @chipchirp The disability system is not enough to properly help everyone, and especially bad with mental instead of physical issues, I'm convinced. I just wanted to point out some institutionalized accommodations. I think that in principle it's awesome that we have these. This way not everybody needs to fight their employers about them alone. @chipchirp Accommodations would vary from person to person, and unfortunately they're often very hard to get. For me, one huge quality of life upgrade was working from home. WfH made it possible for me to work full-time for the first time in years, as it removes a lot of stressors. I do, however, still have to take more time off work than the average allistic person. Knowing my limits and when I need to take a few days to recover has helped me avoid recurring burnout. @newtsoda I'd much rather never deal with autistic burnout ever again, but knowing that's likely improbable, I'm glad I understand myself better and maybe can work on mitigating enough of the big things that lead to burnout to have the spoons to deal with the small things when they reveal themselves in the quiet. @aaronesilvers @newtsoda I've burned out at work a few times, but honestly the biggest barrier to opportunity for me is the fact that the employee selection process basically everywhere is a gauntlet of introvert filters. An alternative to employment interviews would be the most valuable accommodation for the likes of me. @newtsoda wow. Very informative. I am beginning to understand that a lot of the things people called me crazy for are actually me being on the spectrum. Thanks for sharing. @newtsoda I have a burnout just thinking about the full-time job. At 37 I'm still recovering after years of everyday schooling and dealing with mental health issues. I was diagnosed at 35. @newtsoda Thanks for that! It's really on point. And nice to see you on Mastodon :ablobcathappypaws: @newtsoda Ah. This would certainly explain certain situations I've had in the past with people yeah.... :ms_pleading: :pawy1_pright: :pawy1_pleft: @newtsoda That's interesting Hi @newtsoda, thanks so much for creating this comic. I relate 100%! I've never worked a fulltime paid job, despite sometimes working from home 50-60 hrs/week, and burnout is a big reason why. Do you mind if I copy and share it around our autistic community? For entirely non-commercial purposes of course. I think it would really help a lot of our people to understand and have compassion for their own struggles, as it did for me, and help the NT people around us to understand us better too. @newtsoda First home office (where I could control the environment): 1981. Most of my career has been what we now call "gig work". Longest time spent in a single gig: 3 years. I've never been diagnosed as #ActuallyAutistic but do wonder if I'm not on the spectrum. Like very ordered, set routine, suffer high sensitivity to noise, and find #anxiety a great problem. Have had to resign from my job due to #burnout. A lot of problems with mickey-taking at school. @newtsoda So-called working world must deliver on the promise of inclusion. Under the right conditions, most people will be able to work! @Kinderrechte @newtsoda "being able to work" shouldn't be the point. the point should be to not /have/ to work. work is the problem. @SarahEatWorld This is an older comic, but the figure at the time was taken from the National Autistic Society (there might be more recent statistics): https://www.autism.org.uk/what-we-do/news/government-must-tackle-the-autism-employment-gap @newtsoda ... well, that certain explains the periods I've always believed where depression. (I now have half a diagnosis and will be moving into an official one once things starting to get reasonable. It took me almost 40 years) @newtsoda I managed to make it until 38. Covid hit, I was already ridiculously burned out, so I walked away. I'm a part time delivery person right now, though I'm hoping to find something better for me soon. Unfortunately, pushing my mind & body beyond its limits for over 20 years without a single vacation has led to a variety of disabilities. Odds are, I'll end up on disability instead of back at work, especially if my surgeon doesn't grow some balls soon. 😡 @newtsoda my son is autistic and I’ve never been diagnosed but I’ve considered getting screened for it. I’ve never had a job longer than 2 yrs (or lived in the same place longer than 2) and now I travel for work as a contractor so that I don’t have to be in the same job more than a few months @newtsoda I wanna thank you so much for this comic. It describes my current situation so perfectly, and I know I'm not just a broken weirdo. While I'm not diagnosed autistic, I did send this to my team lead so he knows what's going on with me being all broken at work. A lot of folks doing these studies and posting these papers and being certain of their findings... They don't ask. There's a great deal of investment in saying 'okay, these are the problems', and then practically zero in 'how would *you* like them to be fixed?' Supposed solutions are forced, instead of discussed, because they work perfectly well for otherwise 'normal' people experiencing these things. And then they don't work. Just _asking_ might give a better path forward. @newtsoda great comic. Im employed but this definitely describes how i felt about formal education and why i didnt go to college @newtsoda I'm not autistic, but I empathize a lot with this. There have been many times when all I wanted was to take a break from working for a few months. Modern life can be exhausting at times. The 40 hour work week is insane and unsustainable (at least without neglecting something important in your life). @newtsoda where does that 2% statistic come from? Bein adult diagnosed and working for myself, so not really employed, it is an interesting one. The last panel in the second image (trying to remain "normal") for an entire work day was always the greatest challenge for me, it resonates quite a bit with me. @newtsoda I needed to learn about this term today, thank you! ;o; I received my diagnosis earlier this year and this is absolutely something I've been struggling with but didn't have the words to properly convey the feelings. @newtsoda yeah... all this... we've been burned out basically our entire life and we need to get a job, the only option is full-time, and I have no idea how we're going to handle that. college was hell. @newtsoda and sometimes you burn hard enough to never recover your precedent cognition and energy again. Took me 1,5 year of nothing to recover from the last one, and I'm still way more fragile than before, my attention who used to be good enough is all over the place, I don't think I will ever recover completly (I'm not even 30). |
@newtsoda Yep, that was me from 14 untill I got diagnosed at 37. Life was a literal hell for me.