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Newtsoda

Less than 20% of autistic adults are in full-time employment. Many of us drop out of the workforce after just a few years. Why is that?

Let's talk about Autistic Burnout!

#ActuallyAutistic #Autism #Neurodivergence #MastoArt #Comic #Comics

Comic title: Autistic Burnout.
Dee lies on the floor, looking exhausted. “Hi!” she says. “You're probably wondering what I'm doing down here.” She turns over. “Have you ever heard of 'Autistic Burnout'? If you're autistic yourself, you've likely experienced it before.”
The next panel shows an infographic of many Dees in various states of duress. The text reads:
Autistic burnout is best described as a period of extreme mental and physical exhaustion from day to day life. Experiences vary between each person, but it can be accompanied by: loss of skills, difficulty regulating emotion, increased sensory sensitivity, a surge in repetitive behaviours, intense anxiety and other mental health issues.
The first panel shows Dee pointing at a depleted battery. “A lot of autistics say that burnout occurs as a result of trying to blend in with and meet the daily demands of the neurotypical world. Masking and camouflaging can be useful skills for fitting in at school or work, but they use up a lot of energy," she says.
The second panel shows Dee screaming at the top of her lungs.
“I always compare it to having to shout all day long. Most of my self-expression is internal, so I have to make an active effort to use body language, facial expressions, and tone.”
In the final panel, Dee is twisting and contorting herself into a really over the top thumbs up pose with a fake smile. She looks exhausted.
“Hello, how are you?!” she says in an overwrought manner. 
“Imagine having to do really over the top reactions for eight hours every day—that's what it feels like!”
Another cause of burnout can be overstimulating environments, such as the bus we use to go to school or noisy work offices.
The first panel shows a car speeding along, with a clock in the background. Text:
One of the biggest problems of autistic burnout is that the world is not built to accommodate our needs. It's really hard to avoid or recover from it when we're expected to go to work or school five days a week, follow hectic schedules, and blend in with society.
The second panel shows Dee struggling to walk, a ball and chain attached to her ankle.
It also doesn't help that scientists only recently started doing research on this topic after conversations with adult autistics. For years and years we've had to muddle through this experience without proper recognition.
In the final panel, Dee is talking to her employer. He looks angry.
And without recognition it's hard to get accommodations at school or work, which can mean being forced to drop out or take lots of sick days, without really being able to give an official reason why.
So let's keep raising awareness together and demand better research!
73 comments
Gremriel

@newtsoda Yep, that was me from 14 untill I got diagnosed at 37. Life was a literal hell for me.

imogen

@newtsoda this is why I tend to take breaks in between fulltime jobs :(

Anaterya

@newtsoda

I live in France and I'm lucky enough to work in the educative system: I work full time 3 days a week, and I have holidays for 2 weeks every 7 weeks, plus summer holidays for about 2 months, so it helps a lot to not have a burnout

Anaterya

@jfriday @newtsoda It has good and bad sides, just as every country I think ^^

Sister Tenebrae

@newtsoda Thank you, my partner hit burnout recently this way and scared herself, I've been sending over everything I've found on this at her request, I'm adding this to the set

Fish :vegan:

@newtsoda I have never been not burned out, it seems.

Parami

@newtsoda Thanks for this. I find this sort of thing helpful in understanding autistic friends

Pris Blossom

@newtsoda Thank you for this! I often need to see/read these reminders living in a household where i’m the only one not on the spectrum and wanting to understand as much as possible.

rhapsodos

@newtsoda... That's quite how I feel right now oops

Pam

@newtsoda I hear accommodations thrown around a lot but I wonder what some of these would be?
Of course, two neurodivergent people associated with the same label will have different needs. But all the examples I first come up with are things that maybe I can do, a tool to try, a system, & so on, to demonstrate that I don’t need to be a draw. I kinda struggle to make an ask of others, because why would they bother? Instead I hit a plateau and just fry while trying pull myself out.

lizzzzard

@chipchirp @newtsoda if you're autistic "enough", you count as disabled here in Germany. One of the associated accommodate it's you get more sick days. (Above 50% or so disabledness, which is roughly equivalent with "not being able to hold a steady employment")

For the employer you count towards a quota of disabled employees. If an employer is big enough and doesn't meet its quota, they have to pay a fine.

Pam

@lizzard @newtsoda On one hand yay, support exists somewhere. But like, the all-or-nothing cutoff is brutal. Why have a piecewise function when a linear function would work and be way less inherently cruel.

lizzzzard

@chipchirp @newtsoda oh, it's a linear function alright, but I'm not entirely sure how it's handled for autism.

The percent disabledness scale is universal to all kinds of disabilities. There's values you get for missing digits is limbs, sitting in a wheelchair etc. Only some rules, especially those affecting employers, have a threshold. I believe you get to go to the zoo for free at less than 50% for example - but I'm not that familiar with the system.

Newtsoda

@lizzard @chipchirp Not to stir the pot, but I'm originally from Germany and had to leave the country due to absolutely abysmal attitudes towards disability there. Educated Germans will look you straight in the face & argue that they don't think wheelchair access in public spaces should be considered a requirement. And don't get me started on the approach to education... It is, sadly (and I expect mostly unconsciously), a remnant of policies & attitudes from a certain period of German history...

lizzzzard

@newtsoda @chipchirp okay, that sounds harsh. Sorry you had to hear such nonsense! Things are changing much too slowly, that's true.

Also, yeah, do not get me started on any aspect of the education system. It's a shame in all kinds of ways.

lizzzzard

@newtsoda @chipchirp The disability system is not enough to properly help everyone, and especially bad with mental instead of physical issues, I'm convinced.

I just wanted to point out some institutionalized accommodations. I think that in principle it's awesome that we have these. This way not everybody needs to fight their employers about them alone.

Newtsoda

@chipchirp Accommodations would vary from person to person, and unfortunately they're often very hard to get. For me, one huge quality of life upgrade was working from home. WfH made it possible for me to work full-time for the first time in years, as it removes a lot of stressors. I do, however, still have to take more time off work than the average allistic person. Knowing my limits and when I need to take a few days to recover has helped me avoid recurring burnout.

Aaron JawnXotic, n’est-ce pas?

@newtsoda I'd much rather never deal with autistic burnout ever again, but knowing that's likely improbable, I'm glad I understand myself better and maybe can work on mitigating enough of the big things that lead to burnout to have the spoons to deal with the small things when they reveal themselves in the quiet.

n8chz ⒶⒺ

@aaronesilvers @newtsoda I've burned out at work a few times, but honestly the biggest barrier to opportunity for me is the fact that the employee selection process basically everywhere is a gauntlet of introvert filters. An alternative to employment interviews would be the most valuable accommodation for the likes of me.

Mitch Effendi (ميتش أفندي)

@newtsoda wow. Very informative. I am beginning to understand that a lot of the things people called me crazy for are actually me being on the spectrum. Thanks for sharing.

Agata @ Holy Pangolin Studio

@newtsoda I have a burnout just thinking about the full-time job. At 37 I'm still recovering after years of everyday schooling and dealing with mental health issues. I was diagnosed at 35.

Nichtsdestotrotz

@newtsoda Thanks for that! It's really on point. And nice to see you on Mastodon :ablobcathappypaws:

Rassy Dassy Zazzy

@newtsoda Ah.

This would certainly explain certain situations I've had in the past with people yeah.... :ms_pleading: :pawy1_pright: :pawy1_pleft:

Kai / Carlos / Luna

@newtsoda That's interesting
Sounds kinda like what I'm going through except I regulate emotions too well. Also don't think I ever got the hang of masking. (I do not know of a way to either mask or unmask, and my ASD seems to be very visible) And the cause for me may be more trauma.

kinoko 🍓

@newtsoda @snowyfox I feel this so much. Currently taking a break again between jobs party because of this. I feel like I literally can’t survive another burnout

Eggler

@newtsoda I've never had a job longer than 2 years, and that was 5 years ago. Lately it's been 3-6 months...retail and customer service jobs are all I can get, but they're killing me.

Strypey

Hi @newtsoda, thanks so much for creating this comic. I relate 100%! I've never worked a fulltime paid job, despite sometimes working from home 50-60 hrs/week, and burnout is a big reason why. Do you mind if I copy and share it around our autistic community? For entirely non-commercial purposes of course. I think it would really help a lot of our people to understand and have compassion for their own struggles, as it did for me, and help the NT people around us to understand us better too.

Newtsoda

@strypey Please feel free to share it to help spread awareness for all of us 🙂

Alan Langford

@newtsoda First home office (where I could control the environment): 1981. Most of my career has been what we now call "gig work". Longest time spent in a single gig: 3 years.

enduser

@newtsoda these kinda make me wonder if there is a relationship between autism and being an empath. 🤔

DELETED

@newtsoda this is me. So much exhaustion, so much "this is just too much for me" within the last - oh well at least 35 years. Can hardly remember not being mentally tired.

Myriam :ch_Neuchatel:

@newtsoda as neurotypical colleagues, can we help in any way ?

Jonathan Wright

@newtsoda

I've never been diagnosed as #ActuallyAutistic but do wonder if I'm not on the spectrum.

Like very ordered, set routine, suffer high sensitivity to noise, and find #anxiety a great problem. Have had to resign from my job due to #burnout.

A lot of problems with mickey-taking at school.

Kinderrechte

@newtsoda So-called working world must deliver on the promise of inclusion. Under the right conditions, most people will be able to work!

Frost「:verified:|:therian:|霜の狼|人面獣心」🐺❄️

@Kinderrechte @newtsoda "being able to work" shouldn't be the point. the point should be to not /have/ to work.

work is the problem.

ardydo

@newtsoda uuuuh. fuck.

this is 100% me (I'm undiagnosed but 99.9% sure I have it)

SarahEatWorld

@newtsoda
Experienced that too!
Do you have a source for those 20%?

Newtsoda

@SarahEatWorld This is an older comic, but the figure at the time was taken from the National Autistic Society (there might be more recent statistics):

autism.org.uk/what-we-do/news/

Antonius Marie

@newtsoda ... well, that certain explains the periods I've always believed where depression. (I now have half a diagnosis and will be moving into an official one once things starting to get reasonable. It took me almost 40 years)

Okesska

@newtsoda im always switching jobs, settling down is way too much for me. hoping i can find something downtown thats low demand like a library or something. it's been really rough lately being full time security at a huge mall

Okesska

@newtsoda also do u have the study/source for the 20% stat? it's really interesting to me i had no idea it was that low

otto9otto

@newtsoda I never even came close to burnout in my engineering job. But then, it was close to how I might choose to spend my free time.

Chewie!!

@newtsoda I can relate to that so much. Nobody ever seems to understand 😞

Liz Lansdown :ir:

@newtsoda I was diagnosed a few years ago so I didn't know that it was burnout I was suffering from, but it was, and it was on a repeating cycle and it became really damaging. Having terminology for it helped so much, but I lost friends and jobs due to these sometimes very disastrous burnout episodes. After diagnosis and weekly therapy I feel better able to cope, but the threat of a full scale burnout episode is always there as it is exhausting to exist in this neurotypical world. The other thing to add to the awareness is the sometimes permanent loss of skills that repeated or extreme burnout can cause. There are things that I still cannot do or have to fight through anxiety / brain fog to try and do.

@newtsoda I was diagnosed a few years ago so I didn't know that it was burnout I was suffering from, but it was, and it was on a repeating cycle and it became really damaging. Having terminology for it helped so much, but I lost friends and jobs due to these sometimes very disastrous burnout episodes. After diagnosis and weekly therapy I feel better able to cope, but the threat of a full scale burnout episode is always there as it is exhausting to exist in this neurotypical world. The other thing...

Sabse

@newtsoda thank you, a friend of mine is home now for almost 2 years I think. She's been working for years and didn't even know she's autistic until she was unable to leave home and had to get help.

DELETED

@newtsoda I managed to make it until 38. Covid hit, I was already ridiculously burned out, so I walked away. I'm a part time delivery person right now, though I'm hoping to find something better for me soon.

Unfortunately, pushing my mind & body beyond its limits for over 20 years without a single vacation has led to a variety of disabilities. Odds are, I'll end up on disability instead of back at work, especially if my surgeon doesn't grow some balls soon. 😡

NomadicNerd (StoleUrSweetroll)

@newtsoda my son is autistic and I’ve never been diagnosed but I’ve considered getting screened for it. I’ve never had a job longer than 2 yrs (or lived in the same place longer than 2) and now I travel for work as a contractor so that I don’t have to be in the same job more than a few months

Susan60

@newtsoda Never in 1 workplace for more than 5 years, time-out for kids & uni, part time (in 3 different workplaces) for last 9 years including a 2 year pandemic hiatus . Another thing that helps confirm diagnosis.

Omni Qi

@newtsoda Increased sensitivity, anxiety, mood swings... This explains way too much. 😿😿😿

DELETED

@newtsoda we are forced to participate in a world designed by others for others to suppress the very idea of us and the way we think. It’s exhausting.

Wasp

@newtsoda This certainly explains a lot about how my last job affected me.

The M.A.

@newtsoda I've never had a long-term job, just one-off acting opportunities, but I know what it's like to go through autistic burnout! 😓

Robin Syl 🌸:blobcatreach:​

@newtsoda I wanna thank you so much for this comic. It describes my current situation so perfectly, and I know I'm not just a broken weirdo. While I'm not diagnosed autistic, I did send this to my team lead so he knows what's going on with me being all broken at work.

Jennifer Kayla | Theogrin 🦊

@newtsoda

A lot of folks doing these studies and posting these papers and being certain of their findings...

They don't ask.

There's a great deal of investment in saying 'okay, these are the problems', and then practically zero in 'how would *you* like them to be fixed?' Supposed solutions are forced, instead of discussed, because they work perfectly well for otherwise 'normal' people experiencing these things. And then they don't work.

Just _asking_ might give a better path forward.

b33rbashjawnson

@newtsoda great comic. Im employed but this definitely describes how i felt about formal education and why i didnt go to college

Mallory 🏳️‍⚧️

@newtsoda I'm not autistic, but I empathize a lot with this. There have been many times when all I wanted was to take a break from working for a few months. Modern life can be exhausting at times. The 40 hour work week is insane and unsustainable (at least without neglecting something important in your life).

f1ip

@newtsoda where does that 2% statistic come from?

Bein adult diagnosed and working for myself, so not really employed, it is an interesting one.

The last panel in the second image (trying to remain "normal") for an entire work day was always the greatest challenge for me, it resonates quite a bit with me.

Stefanie⭐🏳️‍⚧️

@newtsoda I needed to learn about this term today, thank you! ;o; I received my diagnosis earlier this year and this is absolutely something I've been struggling with but didn't have the words to properly convey the feelings.

Axel! ❄

@newtsoda this is so much. I'm autistic and I am thriving in my 5 hours a day part time job as a tech assistant in an elementary school, as apposed to the job I left in January which was an office job.

The sad part is of course that's not full time which means no health insurance...

Frost「:verified:|:therian:|霜の狼|人面獣心」🐺❄️

@newtsoda yeah...

all this...

we've been burned out basically our entire life and we need to get a job, the only option is full-time, and I have no idea how we're going to handle that.

college was hell.

Zoey

@newtsoda Frighteningly relatable lol. 😞

Alex Q (misplaced)

@newtsoda and sometimes you burn hard enough to never recover your precedent cognition and energy again.

Took me 1,5 year of nothing to recover from the last one, and I'm still way more fragile than before, my attention who used to be good enough is all over the place, I don't think I will ever recover completly (I'm not even 30).

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