@QasimRashid I’m so sorry that your family and your brave daughter have had to endure this terrible system in the USA. I’ll fight tooth and nail against the politicians and insurance companies that would like to install the same horrific private system in Canada.

@QasimRashid. 🙏

@QasimRashid
Thank you for sharing your and your wife's journey in getting your daughter the treatment she needs to live. The hellscape of our health insurance system only amplifies the pain we face as humans struggling to do the right thing, and survive.
I was unaware insurance companies are literally blocking their customers who need biologics. They are expensive, yes. But we are humans and need to be treated as such. I first read your account a few years ago, it's great to see improvement.

@QasimRashid Sorry your family and especially kid had to go through this senselessly inhumane system. Thank you for writing and sharing this.

@QasimRashid

When I was a much younger man someone described insurance as "legalized gambling".

As an older, wiser and sadder man I feel quite comfortable saying that "insurance is legalized and rigged gambling where the house can change the rules recursively at any time with no notice and no consequences to themselves."

@QasimRashid all that matters is the attention

"But we soon learned another sinister result of hyper-privatization of health insurance—even if we had the excessive means to pay the hundreds of thousands of dollars out of pocket, the hospital would not accept the funds.

Why? The industry is such that not only do insurance companies deny 51% of claims, they have enacted policies forbidding people from paying for the critical medication they need out of pocket, lest the insurance company lose control and revenue. 'Either you pay us, or you pay no one..."

@QasimRashid I am so sorry to read about your struggle. My son got IBD when he was 18 and fortunately got the treatment he needed right away (we live in Scotland, Uk). He is now on Humira which works well. He has a Masters from Oxford and a Phd (Physics) and has USA citizenship but could not accept offers in the USA as he could not get insured. Their loss! Best wishes to you.

@QasimRashid heart breaking history. Congress needs to act, because they make they laws to protect those of us who don't.