@stefano
Exactly! Great post. I am a retired nurse and I remember well, if a patient's paper notes went missing, it felt like we were working down a coal mine without a light!

Then, I took my son who was 9 years old for his appointment. He is fine but was born with a heart condition. He hated the doctors looking at him, and talking about him but had been seen 3 monthly and then 6 monthly from birth. Well, on that day all his records were missing. They never ever turned up, which meant that many of his past tests had to be repeated. Expensive for our NHS and distressing for my son.
Anyhow, the moral of this story is, ever since then I asked for a copy of all my families investigations and results. Nowdays, the GP's and hospitals should be happy to do that if a patient wants to keep their own copy.